Ethics and human genetics (Proceedings of the 2nd Symposium on Bioethics, Strasbourg, 30 November - 2 December 1993) (1998)

Table of Contents

Opening of the Symposium
Introductory remarks

Genetics at the population level
Eugenics and past mistakes- can they now be forgotten ?
The Cyprus experience- screening to combat a serious genetic disease
Genetics at population level : contribution of the local Association in the Cyprus B thalassaemia Project

Debate
Consensus ethics in medical genetics ?
Can there be consensus on ethics in human genetics ?
Consensus ethics in medical genetics ?
Human genome research and consensus ethics in medical genetics

Debate
Is the human genome patentable ?
The proposal of the Commission of the European Communities
The current practice of the European Patent Office

Debate
Confidentiality issues in medical genetics
The need for privacy
The need for laws, rules and good practices to secure optimal disease control
Securing privacy in medical genetics
Medical genetics, confidentiality and insurance

Debate
Human rights issues in research on medical genetics
The dilemma of the doctor

Debate
Finding a balance between people's rights to autonomous decisions and public demands for regulations
Human genetics : towards a balance between the freedom of the individual and the need for State regulation
The interaction of rationality and freedom of conscience in legislation on controveresial biethical issues
Finding a balance between people's rights to autonomous decisions and public demands for criminalisation

Conclusions of the Symposium
General report
Proposals for future work of the CDBI
Closing of the Symposium

Appendix I - Programme of the Symposium
Appendix II - List of participants
Appendix III - Bibliographies/ references